CDC establishes Zika pregnancy registry

As part of the response to the Zika outbreak, the Centers for Disease Control and Prevention (CDC), in collaboration with state, local, tribal, and territorial health departments, established a pregnancy registry for comprehensive monitoring of pregnancy and infant outcomes following possible Zika virus infection. The registry is an active surveillance system of pregnant women with laboratory evidence of possible Zika virus infection in the 50 U.S. states and DC, and in the U.S. territories. 

On May 20, 2016, CDC released detailed information about the registry and is initiating weekly reporting of the number of pregnant women followed in the registry. 

Understanding the range of health effects linked with Zika infection during pregnancy, as well as which pregnancies may be at risk for poor outcomes is essential. The data collected through these registries will be used to update recommendations for diagnostic testing, prenatal care and monitoring, and counseling of pregnant women and families affected by Zika virus. Information about the number of pregnant women affected will also assist in planning for services for these women, infants and families.

The CDC urges all organizations to support the registry.  Each new data point collected through these surveillance systems contributes to what we know about Zika virus, which will improve the care provided to patients affected by the virus. Specifically, the CDC requests that healthcare organizations support the registry by designating dedicated staff who can assist in the completion of pregnancy data collection forms and who will be responsible for reporting pregnant women with Zika virus to their health department.